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Mon, Feb 28


A Moment For A Mogensen On Rare Disease Day

Rare Disease Day 2022

Rare Disease Day takes place worldwide, every year, to help raise awareness among policymakers and the public about rare diseases and their impact on the individuals life. Duchenne Muscular Dystrophy, is in deed a rare disease.

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Rare Disease Day 2022
Rare Disease Day 2022

Time & Location

Feb 28, 2022, 7:00 AM – 11:00 PM

A Moment For A Mogensen On Rare Disease Day

About the event

Rare Disease Day is an ordinary day, dedicated to share things about the unordinary lives of so many people living with a rare disease! As many of you know, both our boys, Mason and Jaxton, have Duchenne Muscular Dystrophy, which is a rare genetic disease that affects boys almost exclusively and causes progressive muscle weakness. Patients typically lose the ability to walk when they reach 8 to 12 years of age, and die as a result of respiratory or cardiac failure. There are very few treatment options and currently no cure for Duchenne. Today is a day, YOU,  can help change that! Its simple, donate to an organization fighting against the disease, share some facts about the disease with your friends, family and/or associates, post about it on social media platform, make a video for YouTube or TikTock about the disease or perhaps with an individual living with the disease...the ways, these days, to share things is really endless! And I hope you will choose to join us and raise some much needed awareness about this rare disease this year! 

Like every year, I share the top organizations that have really made a difference on our journey and I encourage you to donate to those specifically if you are able, but this year I also will be collecting Team Mogensen t-shirt requests and all money received will be going directly into our team efforts for the MDA Muscle Walk! For more information about the walk, please visit 

I hope, whatever you do today, you consider supporting our family and so many other families living their lives with a rare disease in whatever way you are able to! 

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