Rare Disease Day 2022

Rare Disease Day is an ordinary day, dedicated to share things about the unordinary lives of so many people living with a rare disease! As many of you know, both our boys, Mason and Jaxton, have Duchenne Muscular Dystrophy, which is a rare genetic disease that affects boys almost exclusively and causes progressive muscle weakness. Patients typically lose the ability to walk when they reach 8 to 12 years of age, and die as a result of respiratory or cardiac failure. There are very few treatment options and currently no cure for Duchenne. Today is a day, YOU,  can help change that! Its simple, donate to an organization fighting against the disease, share some facts about the disease with your friends, family and/or associates, post about it on social media platform, make a video for YouTube or TikTock about the disease or perhaps with an individual living with the disease...the ways, these days, to share things is really endless! And I hope you will choose to join us and raise some much needed awareness about this rare disease this year! 

Like every year, I share the top organizations that have really made a difference on our journey and I encourage you to donate to those specifically if you are able, but this year I also will be collecting Team Mogensen t-shirt requests and all money received will be going directly into our team efforts for the MDA Muscle Walk! For more information about the walk, please visit https://mda.donordrive.com/index.cfm?fuseaction=donordrive.team&teamID=12940 

I hope, whatever you do today, you consider supporting our family and so many other families living their lives with a rare disease in whatever way you are able to!