we are the mogensen's.
just a family living to laugh, have fun, and go on adventures.
in January 2018, we started a whole new adventure, though, it didnt make us laugh and hasnt been one bit of fun...
i dont think I will ever forget the call...
the one you know you have to answer but dont want to,
the one you feel in your bones is about to change everything,
the one you can never, ever, ever wrap your mind around...
THAT call that confirmed our oldest son Mason (7 years old at the time) would be diagnosed with Duchenne Muscular Dystrophy.
we had NO idea what duchenne even was,
we had NO known family history,
and we had NO clear or obvious signs that our son had a rare, genetic disease.
we were literally in complete shock.
and in that moment, EVERY.SINGLE.THING changed.
duchenne is a muscle wasting disease and a few months before the call, Mason seemed to be having a tough time climbing our stairs, we really thought he had pulled a muscle in his leg or perhaps may have been having some hip trouble...NEVER did we think he was suffering from the loss of his muscle strength because of some disease.
but he was.
and because duchenne is a male prominent disease, the doctor immediately sent our younger son Jaxton, (5 years old at the time) to be tested as well...
jax had NO signs or symptoms...there was NO way he would be diagnosed...
jax would also be diagnosed with Duchenne Muscular Dystrophy.
the shock has still not set in.
we live with duchenne muscular dystrophy.
and life has been changing EVERY. SINGLE. DAY. since we got THOSE calls.
are determined to keep laughing, keep having fun and keep going on adventures.
even though, its so freaking hard with duchenne.