It only feels right to start a new year with a new post, a new vision, and a whole new perspective. So here I go, a new year and some new...

do we ever really 'get over' the loss of someone we love? can that hole ever be truly filled? will we ever be the same person we were...

*DISCLAIMER: THIS POST IS NOT FOR THE WEAK, SELF-RIGHTOUES, or JUDGMENTAL. *Do Not Read if you are perfect, lack empathy or never say bad...

hey EVERYONE! its been a minute.... actually, its been almost a year. but whos really keeping track? we are back. wish i could say "and...

As many of you know, today is World Duchenne Awareness Day. It is a day we globally come together to recognize, fight, and share...

Have you ever had that feeling? you know, THAT feeling, that maybe, just maybe, you must be too awful, too weird, or too unlikeable?...

I know, to many of you, tomorrow is just another day... just another MONDAY... just another day for extra strong coffee, extra tired eyes...

Happy new year friends, family and followers, I hope this post finds you all healthy and well. WOW. another year done and gone. i swear,...

Its been four months since my last post. I wish there was some great reason why...but there isnt. My heart just hasnt been in it. My...

Recently Blaine and I watched a film currently on Netflix, called "The Fundamentals of Caring" based off a novel titled, The Fundamentals...

As many of you know, I have experienced the feeling of true and ultimate sadness. For the past 13 years I have lived every single day...

At the end of every year, we all have these grand ideas for what the new year is going to be... what the new year is going to look...

Can you even wrap your mind around 2020? I mean, the end of the year, every year, we get to analyze and articulate all that went on...

If you would have told me in January of twenty twenty that by December, our life would look like it does currently, I would have laughed....

Every year, for the past few years the community of individuals affected by Duchenne Muscular Dystrophy dedicates the day of September...

Have you ever thought about how lucky you are to be you? to not be me. to have friends? and a family? Have you ever thought about how...

Two months in quarantine... and no end in sight. Wowza. This has been so much more difficult than I could have ever imagined. I cant...

Hello everyone! I hope all of you are surviving. I know we are barely hanging on at this point, so please keep us in your prayers. Its...

The past eleven years have been nothing short of difficult. A single death changes you in so many ways. And I experienced five deaths all...

When I think of victory, I definitely dont think of Duchenne. I would consider Duchenne, the complete opposite, actually. And I would...